About Rider’s For Moebius

Riders for Moebius was started in 2009 after Kevin Brailsford was diagnosed with Moebius Syndrome after his parents spent months seeking a diagnosis. Kevin’s parents (Kevin’s dad is a long-time avid rider of motorcycles), with the help of Kevin’s great-aunt, started Rider’s to help bring awareness to those with Moebius Syndrome.

Kevin was the Holiday Hero on January 4th, 2019. Every year the Many Faces of Moebius Syndrome group selects one individual each day for 6 weeks to be that day’s Holiday Hero.

Kevin was born with all of the complications associated with Moebius Syndrome. Kevin was evaluated by numerous doctors, with multiple diagnoses, and was not expected to live beyond a few months of age. Kevin’s mother’s gut feeling told her something was not right about this. At 15 months of age, Kevin was given hope. A new neurologist reviewed Kevin’s medical history, and spent under a minute examining him, giving him the diagnosis of Moebius Syndrome. Kevin’s mother Kacie spent countless hours learning and researching about Moebius and becoming involved with the Moebius community, including her involvement with the Many Faces of Moebius Syndrome.

Kevin’s parents mission for the last 10 years has been to educate and bring awareness of Moebius Syndrome. Kevin’s mother Kacie sits on the board of Many Faces of Moebius Syndrome, an international organization that also brings awareness to Moebius Syndrome.

Every year since 2009, between 40 and 65 motorcycles participate in the annual 100 mile Poker Run through the Garden of the Gods in beautiful Colorado to Bishop’s Castle. The goal for 2019 is 100 riders for the ride.

A Barbecue and a large raffle wrap up the event. The raffle provides funding to help the Riders for Moebius in their cause to bring awareness to Moebius Syndrome.